A slideshow update!
|Grandpa Grow and baby pumpkin Grace. This was when she was more sedated, on an epidural, and definitely and sadly in more pain than the following images.|
|Today at 4 pm. Off all the machines and wires! We were just as surprised as you! Less than 48 hours and the process had started to get Grace on her own eating schedule and out into the world.|
|Isn't she happy looking!! She's milk drunk and we are so happy she's doing well.|
Now, I bet you are wondering "what next?" Good question. I'll ask the docs tomorrow. Seriously though, lots of monitoring. More appointments. Watching that the incision heals well. Watching that she gain weight well. Watching her make funny faces in her sleep. You know. Just watching like a hawk. I suppose we will see doc at least every other week for two months. Then more quarterly. Scans for the cancer cells, MRIs to watch the liver and it's size and the metastasizes on it. Oh and waiting for the full pathology on the tumor and it's genetic make up.
She's not cancer free, because the liver still has a spot. In fact many spots. The surgeons noted it when inspecting her innards. Likely those other spots were too small for the MIBG scan to detect their cells OR they have already matured to become benign. THIS IS WHY 4S IS SPECIAL. It doesn't act like other cancers and they certainly don't treat other cancers with a "watch and see" method to see if it will "just go away." But 4S can. And it will. We have faith that even if it didn't, giving her a "whiff of chemo" as my gorgeously brilliant Ped. Hematology Oncologist doc said, she would surely make it to the other side safely.
Now. Sleep. Tonight means back to breastfeeding (and daddy bottle feeding). It could be a long night. We have learned to be in a state of constant transition. Adapt. Reverse. Change gears. The constant? Get your butt in bed. Eat for goodness sake. Have you hydrated? So yes, this has been an exercise in multitasking and transition.
I can also thank the stars above that Kris and I were built for each other. His cracks and divets perfectly fit my own surfaces so that instead of two lonely bricks we are bonded together in union. He as my down to earth confidant and me as his in the sky inspired phoenix. I can change at the drop of a dime and he can see things that have always been there. We learn to adapt to more than just doctors. We grow together, now being so interwined that caring for Grace is more of a dance than a battle. A partner who can follow step or take lead, that is a true blessing. Thank you Lord for all the blessings of our family. There are too many to thank, therefore the only thing to do is pass it on and teach Grace to do the same.
A special thank you to everyone who continues to bless our family with love and prayers and hope. If you can believe this... it went ideally. All of it. My labor and delivery. Our surgery treatment for Grace. I have faith your love and God's love will guide us through these trying next few weeks and months of healing and continued stress of doctors and insurance. We can all breathe a sigh of relief that her tumor is out and that she can grow and gain weight and be a normal baby.